5 Questions for a Brunonian: Jonathan Mooney ’00

Activist, entrepreneur, and writer Jonathan Mooney talks about disability advocacy, Brown’s newest alumni affinity group, and what sets a Brown education apart.

Jonathan Mooney poses for a photo.Before transferring to Brown, Jonathan Mooney ’00 says he was branded the “lazy, crazy” kid and labeled as “deficient” because of his dyslexia and neurodivergence.

Through his work as an activist and writer, Mooney aims to shift cultural perceptions of neurodivergence and disability away from the traditional pathology model and towards a social justice-centric model that embraces different experiences across the human continuum. He co-founded his first social venture, Eye-to-Eye, in his Brown dorm room. Recently, he served as the co-chair of the steering committee formed to create Brown’s newest alumni affinity group: the Disability and Neurodivergence Alumni Collective (DNAC).

What challenges have you encountered as a disability advocate, and how did your time at Brown University influence the way you addressed those challenges?

The first challenge was one of internalized disability and neurodivergent shame. I transferred to Brown; I was not on an elite university track in any way through high school. I survived high school by being an athlete and finding success as a soccer player. On my first day at Brown, I met a transfer student who was out and proud about his neurodivergence. That was a revelation for me. He and I went off to write a book together, called “Learning Outside the Lines.” A number of faculty members who were immersed in social justice literature and critical theory around what is normal and what is not provided a sort of intellectual framework to unlearn that deeply held internalized shame. That was my first challenge, and Brown was instrumental in moving from shame to pride around my neurodivergence.

Challenging the medical model is really what my advocacy, my writing, my speaking, and my social ventures have centered around. My work has been about celebrating and empowering and accommodating, as opposed to fixing atypical brains and bodies. What I learned at Brown was the importance of persistence—to hear “no,” to hear “you’re wrong,” and keep going. Brown provided the intellectual framework and language to challenge the medical model, to look at the social construction of disability, to look at the history of ableism, and be able to articulate that to others.

“ That’s the work of these affinity spaces. It’s essential to the inclusion, empowerment, and belonging of neurodiverse, disabled students and alumni at Brown and beyond – that we have a space to connect and not feel alone. ”

What does your vision for Brown’s disability affinity group look like?

Brown University has played an essential leadership role amongst peer institutions in recognizing the importance of creating a community space for individuals who experience or identify as people with disabilities and/or neurodivergence. DNAC’s mission is to celebrate, connect, and support alumni who have experience or identify with disability or neurodivergence. The group also aims to be a resource for parents and caregivers of children who are disabled and for professionals who are looking to advance disability justice. It’s a place of connection, a place of community, and a space where we can come together to build collective power to advocate for disability justice at Brown and beyond.

Why do you think affinity groups are so important?

One of the things that I am most hopeful about in the arc of disability justice is the recognition of shared knowledge and experience amongst a community that has very disparate physical and cognitive experiences. Eli Wolff, my friend from Brown—and co-chair of DNAC until his passing—was a paralympic athlete. We had very different physical experiences. But we had a shared experience of being demeaned as human beings because we didn’t fit the idea of normal. So there’s power in community. There’s knowledge in community—about how to adapt and navigate a world that wasn’t built for the reality of disability and neurodivergence. 

That’s the work of these affinity spaces—at Brown and beyond. It’s essential to the inclusion, empowerment, and belonging of students and alumni who experience or identify with neurodivergence or disability that we have a space to connect and not feel alone. 

“ It’s been 25 years since I graduated, and the skills I learned while navigating the Open Curriculum, asking myself what I cared about, as opposed to others telling me what I should care about, are the skills I use now. Ultimately, Brown is a North Star for what learning in the 21st century can be.  ”

What advice would you give to Brown students considering pathways of advocacy or community service?

There are so many opportunities for contribution, for impact at Brown and beyond, right now in your life. Be bold in envisioning a world that’s different. Eye-to-Eye took Brown University students with learning differences and had them mentor kids at Fox Point Elementary. Despite public misconceptions that kids with learning disabilities can’t mentor other kids or have problems, these Brown and RISD students with learning differences were models of what could be in the life of a kid. And we heard all sorts of reasons why it couldn’t happen. But we were bold and tried to imagine how it could happen. 

Why Brown?

Look, Brown is what you make it. That is unique in the world of higher education. It’s not your parents’ education, it’s not your dean’s education, it’s not the trustees’ education. You drive it. And in that way, beyond being a curriculum that empowers being multifaceted, being curious, being bold, and taking risks, it’s also practice for life. Because life—it is what you make it. It’s been 25 years since I graduated, and the skills I learned while navigating the Open Curriculum, asking myself what I cared about, as opposed to others telling me what I should care about, are the skills I use now. Ultimately, Brown is a North Star for what learning in the 21st century can be. 

 

Mooney co-founded Eye-to-Eye, an organization that connects local elementary school students and college students with neurodivergence for mentorship and peer support. Today, Eye-to-Eye operates in 17 states and the District of Columbia. He is the author of three books, "Learning Outside the Lines" (Simon and Schuster, 2000), "The Short Bus" (Henry Holt and Co., 2007), and "Normal Sucks: How to Live, Learn, and Thrive Outside the Lines" (Henry Holt and Co., 2019).